Published 2026-08-07
Keywords
- Adolescents,
- Coping Behavior,
- Epilepsy,
- Quality of Life,
- Seizures
How to Cite
Abstract
Introduction: Seizure disorders are among the most common neurological conditions affecting adolescents and may disrupt developmental, emotional, and social functioning. Despite increasing global evidence, studies exploring the lived experiences of Filipino adolescents with seizure disorders remain limited. Objective: This study aimed to explore the lived experiences of Filipino adolescents with seizure disorders, focusing on their challenges, coping mechanisms, and perceived quality of life. Methods: A qualitative phenomenological design was utilized. Eight adolescents aged 12 to 18 years diagnosed with seizure disorders were selected through criterion sampling. Data were gathered using semi-structured interviews and analyzed using Colaizzi’s method. Results: Four major themes were identified and collectively represented by the acronym AURA: Adversity and Anxiety, Uncertainty and Fear, Rising Above Adversity, and Acceptance and Personal Growth Through Experiences. Participants described stigma, emotional distress, and reduced autonomy resulting from the unpredictable nature of seizures. Despite these challenges, they demonstrated resilience through a range of coping strategies, family and spiritual support, structured routines, and gradual acceptance supported by meaningful social relationships. Conclusion: Filipino adolescents with seizure disorders experience complex emotional, social, and developmental challenges while demonstrating resilience through adaptive coping, social support, and acceptance. These findings underscore the importance of holistic, adolescent-centered care that integrates psychosocial support with clinical management to promote their well-being and quality of life.
References
- Awan, S. A., Khawaja, I., Babar, M., & Khan, F. (2022). Prevalence of non-adherence to antiepileptic drugs in patients with epilepsy presenting to the emergency with fits. Cureus, 14(7), e27072. https://doi.org/10.7759/cureus.27072
- Brown, V., Morgan, T., & Fralick, A. (2021). Isolation and mental health: Thinking outside the box. General Psychiatry, 34(3), e100461. https://doi.org/10.1136/gpsych-2020-100461
- Colaizzi, P. F. (1978). Psychological research as the phenomenologist views it. In R. S. Valle & M. King (Eds.), Existential-phenomenological alternatives for psychology (pp. 48–71). Oxford University Press.
- Deak, V., & Mengga, R. C. (2023). The role of prayer as spiritual-religious coping in the healing process from the perspective of Christian psychology. International Journal of Social and Management Studies, 4(4), 54–64. https://ijosmas.org/index.php/ijosmas/article/view/338
- George, T. (2022). Semi-structured interview: Definition, guide & examples. Scribbr. https://www.scribbr.com/methodology/semi-structured-interview/
- Graham-Rowe, E., Katzer, C. B., Riaz, S., Attwood, A., Bates, L., Sainz-Fuertes, R., & Swan, B. (2023). Unmet needs of people with epilepsy: A qualitative study exploring their journey from presentation to long-term management across five European countries. Frontiers in Neurology, 14, 1130817. https://doi.org/10.3389/fneur.2023.1130817
- Hansen, O. A., Clemensen, J., Beier, C. B., Klinting, G. P., Smith, A. C., & Larsen, M. K. (2024). Being an adolescent with epilepsy during the transition from pediatric to adult hospital care: A qualitative descriptive study. Epilepsy & Behavior, 155, 109780. https://doi.org/10.1016/j.yebeh.2024.109780
- Huff, J. S., & Murr, N. I. (2023). Seizure. In StatPearls. StatPearls Publishing. https://www.ncbi.nlm.nih.gov/books/NBK430765/
- Khazew, H. R., & Faraj, R. K. (2024). Illness acceptance and its relationship to health behaviors among patients with type 2 diabetes: A mediating role of self-hardiness. Current Problems in Cardiology, 49(8), 102606. https://doi.org/10.1016/j.cpcardiol.2024.102606
- Kwon, C. S., Jacoby, A., Ali, A., Austin, J., Birbeck, G. L., Braga, P., Cross, J. H., de Boer, H., Dua, T., Fernandes, P. T., Fiest, K. M., Goldstein, J., Haut, S., Lorenzetti, D., Mifsud, J., Moshe, S., Parko, K. L., Tripathi, M., Wiebe, S., & Jette, N. (2022). Systematic review of frequency of felt and enacted stigma in epilepsy and determining factors and attitudes toward persons living with epilepsy. Epilepsia, 63(3), 573–597. https://doi.org/10.1111/epi.17135
- Lim, W. M. (2025). What is qualitative research? An overview and guidelines. Australasian Marketing Journal, 33(2), 199–229. https://doi.org/10.1177/14413582241264619
- Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Sage.
- Mayor, R., Gunn, S., Reuber, M., & Simpson, J. (2021). Experiences of stigma in people with epilepsy: A meta-synthesis of qualitative evidence. Seizure, 94, 142–160. https://doi.org/10.1016/j.seizure.2021.11.021
- McLeod, S. (2024). Erik Erikson's stages of psychosocial development. Simply Psychology. https://www.simplypsychology.org/erik-erikson.html
- Moalong, K. M., Espiritu, A., Fernandez, M. L., & Jamora, R. D. (2021). Treatment gaps and challenges in epilepsy care in the Philippines. Neurology. https://doi.org/10.1212/WNL.96.15_supplement.4272
- Moalong, K. M. C., Jamora, R. D. G., Roberto, K. T., & Espiritu, A. I. (2021). Patterns of Google search behavior for epilepsy and seizures in the Philippines: An infodemiological study. Epilepsy & Behavior, 125, 108377. https://doi.org/10.1016/j.yebeh.2021.108377
- Mohan, S., & Bharathi, M. (2023). Adolescents with epilepsy: Special consideration for teens with epilepsy, prevention of injuries, and nurses’ role. RGUHS Journal of Nursing Sciences, 13(2), 4–9. https://doi.org/10.26463/rjns.13_2_15
- Moser, E., Chan, F., Berven, N. L., Bezyak, J., Iwanaga, K., & Umucu, E. (2020). Resilience and life satisfaction in young adults with epilepsy: The role of person-environment contextual factors. Journal of Vocational Rehabilitation, 52(2), 157–171. https://doi.org/10.3233/JVR-191067
- Nyimbili, F., & Nyimbili, L. (2024). Types of purposive sampling techniques with their examples and application in qualitative research studies. British Journal of Multidisciplinary and Advanced Studies: English Language, Teaching, Literature, Linguistics & Communication, 5(1), 90–99. https://doi.org/10.37745/bjmas.2022.0419
- Ragni, B., Cappelletti, S., De Stasio, S., Tondo, I., Specchio, N., Vigevano, F., & Gentile, S. (2020). The impact of epilepsy on adolescence: A quali-quantitative investigation using focus groups. Mediterranean Journal of Clinical Psychology, 8(2). https://doi.org/10.6092/2282-1619/mjcp-2428
- Rozensztrauch, A., & Kołtuniuk, A. (2022). The quality of life of children with epilepsy and the impact of the disease on family functioning. International Journal of Environmental Research and Public Health, 19(4), 2277. https://doi.org/10.3390/ijerph19042277
- Sievert, D. (2023). The different types of epilepsy. UCLA David Geffen School of Medicine. https://www.ucla.edu/the-different-types-of-epilepsy
- Tanner, A. L., von Gaudecker, J. R., Buelow, J. M., Oruche, U. M., & Miller, W. R. (2023). Adolescents' perceptions of functional seizure self-management strategies, facilitators, and barriers in the school environment. Journal of Psychosocial Nursing and Mental Health Services, 61(10), 19–27. https://doi.org/10.3928/02793695-20230424-04
- Torres, J. A. K. L., Arca-Cabradilla, R., Sy, M. G., Corrales-Joson, M. L. P., Moral-Valencia, M. A., & de Sagun, R. Q. (2019). Burden of care of Filipino children with epilepsy and its impact on quality of life, anxiety, and depressive symptoms among caregivers. Journal of Medicine, University of Santo Tomas, 3(2), 326–335. https://doi.org/10.35460/2546-1621.2018-0120
- Walker, C., & Peterson, C. L. (2024). A longitudinal study over 9 years of the role of social support for people with epilepsy. Exploration of Neuroscience, 3, 352–361. https://doi.org/10.37349/en.2024.00054
- Weiss, A., Canetti, L., David, S. B., Reuveni, I., & Ekstein, D. (2022). Seizure phobia: A distinct psychiatric disorder among people with epilepsy. Seizure, 95, 26–32. https://doi.org/10.1016/j.seizure.2021.12.009
- World Health Organization. (2024). Epilepsy. https://www.who.int/news-room/fact-sheets/detail/epilepsy
