From Diagnosis to Hemodialysis Initiation: Lived Experiences of Patients with Chronic Kidney Disease in Bulacan, Philippines
Published 2026-08-07
Keywords
- Chronic Kidney Disease,
- Hemodialysis Initiation,
- Lived Experience,
- Patient Support
How to Cite
Abstract
Introduction: Chronic kidney disease is characterized by an irreversible and progressive decline in kidney function and remains a major global public health concern. Its increasing prevalence in the Philippines is concerning; however, few studies have examined patients’ lived experiences within the country’s cultural and healthcare context. Objective: This study aimed to describe Filipino patients’ transition from chronic kidney disease diagnosis to hemodialysis initiation in Bulacan, Philippines. Methods: This descriptive phenomenological study used purposive sampling to recruit six participants who met the inclusion and exclusion criteria. Data were collected through in-depth, semi-structured interviews and analyzed using Colaizzi’s seven-step method. Results: The findings indicated that most participants experienced fear, anxiety, denial, abrupt lifestyle changes, and physical discomfort during the initial stages of treatment. As they continued their treatment journey, they gradually became more accepting and adjusted to their new reality despite experiencing considerable physical, emotional, and financial difficulties. This process was supported by their families, healthcare providers, peers, and spirituality. Conclusion: The participants’ experiences underscore the importance of providing holistic, patient-centered care, greater emotional support, and structured education to improve the overall health and quality of life of patients undergoing hemodialysis.
References
- Agustiyowati, T. H. R., Sitorus, R., Waluyo, A., & Besral, B. (2018). The lived experience of patients with pre-dialysis chronic kidney disease: A qualitative study. Belitung Nursing Journal, 4(2), 263–270. https://doi.org/10.33546/bnj.409
- Akhtar, T., Pienaar, A. J., Asmat, K., & Sikander, S. (2025). Lived realities of symptom burden among haemodialysis patients: A phenomenological study from rural Pakistan. BMJ Open, 15(11), Article e106937. https://doi.org/10.1136/bmjopen-2025-106937
- Alsing, J. F. L., Hayes Bauer, E., Brandt, F., & Kampmann, J. D. (2022). Expectations and experiences of patients recently initiated to centre-based dialysis treatment. Healthcare, 10(5), Article 897. https://doi.org/10.3390/healthcare10050897
- Bandura, A. (1986). Social foundations of thought and action: A social cognitive theory. Prentice Hall.
- Bennett, P., Warren, M., Aydin, Z., Beige, J., Bowes, E., Cheung, M., Finderup, J., Gallego, D., Hecking, M., Hurst, H., King, J. M., Kleophas, W., Liossatou, A., Martins, P., Masià-Plana, A., Meuleman, Y., Neri, L., Noruišienė, E., Ortiz, J., . . . Tsukamoto, Y. (2025). Kidney Disease: Improving Global Outcomes (KDIGO) workshop on the nurse’s role in managing the symptoms of people receiving dialysis. Kidney International Reports, 10(2), 313–320. https://doi.org/10.1016/j.ekir.2024.11.029
- Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167–182. https://doi.org/10.1111/1467-9566.ep11339939
- Colaizzi, P. F. (1978). Psychological research as the phenomenologist views it. In R. S. Valle & M. King (Eds.), Existential-phenomenological alternatives for psychology (pp. 48–71). Oxford University Press.
- de Guzman, A. B., Chy, M. A. S., Concepcion, A. F. P., Conferido, A. J. C., & Coretico, K. I. (2009). The language of coping: Understanding Filipino geriatric patients’ hemodialysis lived experiences. Educational Gerontology, 35(9), 769–783. https://doi.org/10.1080/03601270802708384
- Elias, M. A., Van Damme, W., Ku, G. M. V., Kadammanavar, M., & Wouters, E. (2025). Lived experiences of people with chronic kidney disease on maintenance dialysis: A systematic review and thematic synthesis of qualitative studies. BMC Nephrology, 26, Article 22. https://doi.org/10.1186/s12882-025-03952-4
- Fletcher, B. R., Damery, S., Aiyegbusi, O. L., Anderson, N., Calvert, M., Cockwell, P., Ferguson, J., Horton, M., Paap, M. C. S., Sidey-Gibbons, C., Slade, A., Turner, N., & Kyte, D. (2022). Symptom burden and health-related quality of life in chronic kidney disease: A global systematic review and meta-analysis. PLOS Medicine, 19(4), Article e1003954. https://doi.org/10.1371/journal.pmed.1003954
- Gebrie, M. H., Asfaw, H. M., Bilchut, W. H., Lindgren, H., & Wettergren, L. (2023). Patients’ experience of undergoing maintenance hemodialysis: An interview study from Ethiopia. PLOS ONE, 18(5), Article e0284422. https://doi.org/10.1371/journal.pone.0284422
- Hreńczuk, M. K., Rudnicka, W., Piątek, T. D., & Małkowski, P. (2024). Acceptance of illness and health behaviours of patients with end-stage renal disease treated with haemodialysis: A single-centre study. Healthcare, 12(24), Article 2562. https://doi.org/10.3390/healthcare12242562
- Kidney Disease: Improving Global Outcomes (KDIGO) CKD Work Group. (2024). KDIGO 2024 clinical practice guideline for the evaluation and management of chronic kidney disease. Kidney International, 105(4S), S117–S314. https://doi.org/10.1016/j.kint.2023.10.018
- Kim, S., & Lee, H. Z. (2023). The lived self-care experiences of patients undergoing long-term haemodialysis: A phenomenological study. International Journal of Environmental Research and Public Health, 20(6), Article 4690. https://doi.org/10.3390/ijerph20064690
- Li, C., Shan, Y., Yan, X., & Wang, Z. (2025). Qualitative study on the sense of meaning in life in uremic patients undergoing initial hemodialysis. International Journal of Qualitative Studies on Health and Well-Being, 20(1), Article 2545262. https://doi.org/10.1080/17482631.2025.2545262
- Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. SAGE Publications.
- Mehta, K., Hussein, W. F., Leuther, K. K., Fegler, A., Schiller, B., & Bennett, P. N. (2024). The experiences of people starting haemodialysis: A qualitative study. Journal of Renal Care, 50(4), 365–375. https://doi.org/10.1111/jorc.12496
- Montemayor, M. T. (2023, June 2). 7M Filipinos have chronic kidney disease as of 2021. Philippine News Agency. https://www.pna.gov.ph/articles/1202791
- Nair, D., Bonnet, K., Wild, M. G., Umeukeje, E. M., Fissell, R. B., Faulkner, M. L., Bahri, N. S., Bruce, M. A., Schlundt, D. G., Wallston, K. A., & Cavanaugh, K. L. (2021). Psychological adaptation to serious illness: A qualitative study of culturally diverse patients with advanced chronic kidney disease. Journal of Pain and Symptom Management, 61(1), 32–41.e2. https://doi.org/10.1016/j.jpainsymman.2020.07.014
- Pajimna, J. A. T., Orpilla, G. A. L., Milan, M. J. D. C., Virtucio, C. T. S., & Pamatian, J. V. M. (2023). Gaps and challenges in the provision of treatment for patients with end-stage renal disease: Perspectives from the Philippines. The Lancet Regional Health–Western Pacific, 38, Article 100889. https://doi.org/10.1016/j.lanwpc.2023.100889
- Philippine Society of Nephrology. (2024, March 1). Rising incidence of chronic kidney disease in the Philippines sparks call for kidney health awareness: The Philippine Society of Nephrology urges Filipinos to take proactive measures. https://psn.org.ph/2024/03/01/rising-incidence-of-chronic-kidney-disease-in-the-philippines-sparks-call-for-kidney-health-awareness-subtitle-the-philippine-society-of-nephrology-urges-filipinos-to-take-proactive-measures/
- Pollock, C., Carrero, J.-J., Kanda, E., Ofori-Asenso, R., Palmer, E., Niklasson, A., Linder, A., Woodward, H., Pentakota, S., Garcia Sanchez, J. J., Kashihara, N., Fishbane, S., Pecoits-Filho, R., & Wheeler, D. C. (2024). The lived experience of patients with chronic kidney disease: Insights from DISCOVER CKD. American Journal of Nephrology, 55(6), 618–628. https://doi.org/10.1159/000541064
- Reid, C., Seymour, J., & Jones, C. (2016). A thematic synthesis of the experiences of adults living with hemodialysis. Clinical Journal of the American Society of Nephrology, 11(7), 1206–1218. https://doi.org/10.2215/CJN.10561015
- Saedi, F., Dehghan, M., Mohammadrafie, N., Xu, X., Hermis, A. H., & Zakeri, M. A. (2024). Predictive role of spiritual health, resilience, and mental well-being in treatment adherence among hemodialysis patients. BMC Nephrology, 25, Article 326. https://doi.org/10.1186/s12882-024-03768-8
- Shahgholian, N., & Yousefi, H. (2018). The lived experiences of patients undergoing hemodialysis with the concept of care: A phenomenological study. BMC Nephrology, 19, Article 338. https://doi.org/10.1186/s12882-018-1138-4
- Shumbusho, G., Nyenyeri, D. L., Kabahizi, J., Uwiragiye, D., Habyarimana, O., Binayisa, G., Nyirangirimana, A., Twagirumukiza, E., Neil, K. L., Deyessa, N., Leichtman, A., Murayire, J., Dufatanye, E., Nkundimana, G., Sebera, E., & Elbasha, A. M. (2025). Perspectives of adult advanced pre-dialysis chronic kidney disease patients about kidney replacement therapy in three referral hospitals in Rwanda. BMC Nephrology, 26, Article 347. https://doi.org/10.1186/s12882-025-04310-0
- Tong, A., Sainsbury, P., & Craig, J. (2007). Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups. International Journal for Quality in Health Care, 19(6), 349–357. https://doi.org/10.1093/intqhc/mzm042
- Uwiragiye, D., Nkuranyabahizi, M., & Alagbonsi, A. I. (2025). Lived experiences of patients undergoing hemodialysis in selected teaching hospitals in Rwanda. Rwanda Journal of Medicine and Health Sciences, 8(2), 246–261. https://doi.org/10.4314/rjmhs.v8i2.7
